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Post by mao on Feb 10, 2021 5:47:07 GMT -5
He is about functioning on a 2 or 3 years level(varies widely on this.) He got worse and we got a new med for him and he is doing a bit better but not good yet. A lot of the problem is there is NO WAY he is going to wear a mask, it's not worth trying. AS I write this maybe we could take him over to my married daughters house(nice idea!) He is slightly more tolerant about me moving my chrome book into the kitchen(where I do most of my internet stuff). I have the book in a corner of the bedroom where my weak eyes can't see the keyboard. I had insomnia so I entertained myself here. It was a good way to keep my mind occupied. Thanx for all the attention to me, I really appreciate this.
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Post by Death Even XIII on Feb 10, 2021 13:27:37 GMT -5
He is about functioning on a 2 or 3 years level(varies widely on this.) He got worse and we got a new med for him and he is doing a bit better but not good yet. A lot of the problem is there is NO WAY he is going to wear a mask, it's not worth trying. AS I write this maybe we could take him over to my married daughters house(nice idea!) He is slightly more tolerant about me moving my chrome book into the kitchen(where I do most of my internet stuff). I have the book in a corner of the bedroom where my weak eyes can't see the keyboard. I had insomnia so I entertained myself here. It was a good way to keep my mind occupied. Thanx for all the attention to me, I really appreciate this. Stuff involving your kids is one of the toughest things in life to deal with. How old is your son?
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Post by mao on Feb 10, 2021 13:31:36 GMT -5
actually he is 26
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Post by Death Even XIII on Feb 10, 2021 14:34:41 GMT -5
So you have been dealing with this a long time. So does it go beyond just autism? I feel for you man, have you been able to make arrangements for his care when you and your wife are no longer able to do it? I will keep your family in my prayers.
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Post by mao on Feb 10, 2021 14:42:17 GMT -5
No he is in good health otherwise and thank God he is toilet trained so that is something I dont have to deal with., I have 3 other children and I'm certain my oldest daughter will make sure he is cared for or even take him in..THanx for the nice words.He actually has been having a melt down and he just calmed down
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Post by simrion on Feb 12, 2021 19:33:21 GMT -5
I feel for you. Both my 22 year old and 12 year old have non-verbal, the eldest the worse of the two. He won't wear a mask either. Hasn't wandered far from home and yard since last year. Stay well and know we're all thinking about you!
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Post by simrion on Feb 12, 2021 19:35:40 GMT -5
Today is two years since my dear, sweet, lovely, wife Janet was called away from this world
Wow PD that was two years ago? My heart still breaks for you ☹️
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Post by The Perilous Dreamer on Feb 12, 2021 22:19:57 GMT -5
Today is two years since my dear, sweet, lovely, wife Janet was called away from this world Wow PD that was two years ago? My heart still breaks for you ☹️ Thank you simrion, I appreciate that.
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Post by The Perilous Dreamer on Feb 12, 2021 22:23:19 GMT -5
I feel for you. Both my 22 year old and 12 year old have non-verbal, the eldest the worse of the two. He won't wear a mask either. Hasn't wandered far from home and yard since last year. Stay well and know we're all thinking about you! I feel for you mao and simrion I know this is widespread now with a lot of kids, but when I was a kid I don't remember more that a couple of kids all the way through school that this might have applied to. I really wonder what environmental poison is causing this.
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Post by raikenclw on Feb 13, 2021 21:07:24 GMT -5
In my case, I know who is to blame and know that there is nothing I can do about it . . . Yeah. He was just acquitted by the House. Slippery SOB. . . . and am trying to make the best of it. I remain hopeful that someone [perhaps the District of Columbia? Should they get to celebrate becoming the 51st state?] will take him to court and thereby get a couple of pounds of flesh for the rest of us.
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Post by raikenclw on Feb 13, 2021 21:29:06 GMT -5
I feel for you. Both my 22 year old and 12 year old have non-verbal, the eldest the worse of the two. He won't wear a mask either. Hasn't wandered far from home and yard since last year. Stay well and know we're all thinking about you! I feel for you mao and simrionI also feel for the above members, as well as everyone else who must deal with similar issues. Your children are supposed to grow up and take care of you, not the other way around. I know this is widespread now with a lot of kids, but when I was a kid I don't remember more that a couple of kids all the way through school that this might have applied to. I really wonder what environmental poison is causing this. I suspect that the perceived increase is at least partly due to increased awareness. Back in the 60s - when I was a kid - families who had kids with such problems largely didn't allow outsiders to learn about it. Today's more open and accepting society has also likely led to a decreased mortality rate among such children. The prior tradition of secrecy would have necessarily had a relatively higher* such rate, due to chronic severe parental fatigue and consequent inability to monitor/control sufferers. *I can't think of any way to actually evaluate this, it's simply a gut feeling.
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Post by The Perilous Dreamer on Feb 13, 2021 23:07:55 GMT -5
I suspect that the perceived increase is at least partly due to increased awareness. Back in the 60s - when I was a kid - families who had kids with such problems largely didn't allow outsiders to learn about it. Today's more open and accepting society has also likely led to a decreased mortality rate among such children. The prior tradition of secrecy would have necessarily had a relatively higher* such rate, due to chronic severe parental fatigue and consequent inability to monitor/control sufferers. *I can't think of any way to actually evaluate this, it's simply a gut feeling. I think it is pretty likely that you are correct. Often your gut will give you the same answer as a multi-million dollar tax payer funded study.
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Post by The Perilous Dreamer on Feb 13, 2021 23:14:58 GMT -5
In my case, I know who is to blame and know that there is nothing I can do about it . . . Yeah. He was just acquitted by the House. Slippery SOB. . . . and am trying to make the best of it. I remain hopeful that someone [perhaps the District of Columbia? Should they get to celebrate becoming the 51st state?] will take him to court and thereby get a couple of pounds of flesh for the rest of us. I was actually thinking of the China lab that created the bug and then either let it get out through incompetence or possibly was ordered to release it deliberately. I figure it is a 50/50 proposition. I also figure it will not be the last one, as there are many countries capable of doing the same thing. There are also, so many really wealthy people that think 95% of the human race should die to save the planet, it does not make me optimistic. Maybe we should drop this subject before others start posting about it too, which could go south in a hurry.
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Post by Admin Pete on Feb 13, 2021 23:21:27 GMT -5
Yeah, raikenclw and The Perilous Dreamer, tempted to delete a couple of posts, but now lets just say that politics domestic or foreign is off the table for discussion. Now if you want to go down to the Post-Apocalyic area and write a Gamma World style scenario that starts with a bug and work something up, that is open.
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Post by simrion on Feb 20, 2021 19:50:12 GMT -5
I second the observation of "increased awareness" of the various "spectrum" disorders. A number of us or old and wise enough to recognize these conditions were visible in our youth but no one and developed diagnosis for them, at least that is my theory. I know quite a bit second hand as my Wife is a special education teacher so I catch snippets. Back int he day I think it was all lumped as discipline/behavioral problems and approached in heavy handed ways. Sad really, of course the apparent increased awareness may signal larger issues that might be societal & environmental.
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Post by The Perilous Dreamer on Feb 22, 2021 19:07:33 GMT -5
I second the observation of "increased awareness" of the various "spectrum" disorders. A number of us or old and wise enough to recognize these conditions were visible in our youth but no one and developed diagnosis for them, at least that is my theory. I know quite a bit second hand as my Wife is a special education teacher so I catch snippets. Back int he day I think it was all lumped as discipline/behavioral problems and approached in heavy handed ways. Sad really, of course the apparent increased awareness may signal larger issues that might be societal & environmental. I think you bring up some good points. On one hand there is more awareness and the behavior is not being swept under the rug, on another hand the world now compared to the 60s (for instance) is incredibly stressful for children and adults. I cannot imagine being a kid in today's world. On a third hand, we also now have normal kids, that are being treated as problems, because they can't sit quietly for 7 hours a day and that is normal for a lot of kids and an abnormal expectation. IMO kids need to have more active play and I think some kids should start regular (sit at a desk) school as late as seven and in some cases even eight. I think a lot of kids would react better to a active more outdoors early education, where there is a lot more learning by doing.
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Post by raikenclw on Feb 24, 2021 20:29:18 GMT -5
IMO kids need to have more active play and I think some kids should start regular (sit at a desk) school as late as seven and in some cases even eight. I think a lot of kids would react better to a active more outdoors early education, where there is a lot more learning by doing. I agree. Perhaps this could be one good thing that comes from the current global situation? I was listening to NPR some while back, a story about schools in the Netherlands(?) holding classes outside, thanks in part to a remarkably mild winter. There is also the fact that many schools are holding classes only on alternate days, for half their student bodies at a time. And of course there is also the enormous expansion of distance learning (for those districts which can afford this). I suspect that schooling as we used to know it is unlikely to return completely and perhaps that's a good thing.
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Post by The Perilous Dreamer on Feb 24, 2021 20:37:39 GMT -5
IMO kids need to have more active play and I think some kids should start regular (sit at a desk) school as late as seven and in some cases even eight. I think a lot of kids would react better to a active more outdoors early education, where there is a lot more learning by doing. I agree. Perhaps this could be one good thing that comes from the current global situation? I was listening to NPR some while back, a story about schools in the Netherlands(?) holding classes outside, thanks in part to a remarkably mild winter. There is also the fact that many schools are holding classes only on alternate days, for half their student bodies at a time. And of course there is also the enormous expansion of distance learning (for those districts which can afford this). I suspect that schooling as we used to know it is unlikely to return completely and perhaps that's a good thing. I think those families that can are going to be home schooling. There are national organizations that provide a ton of support and curriculum and this is going to push people in that direction. There are a lot of grandparents who would help with homeschooling too.
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Post by raikenclw on Feb 24, 2021 20:42:53 GMT -5
I remember reading a science fiction story wherein teaching was done by androids, which were designed to look and sound like children just a little bit older than their students. The theory was that children naturally give the most attention to those they perceive as knowledgeable peers. The story acknowledged that this really only worked with younger children, IIRC no older than about ten.
Still, I think it's an interesting possibility.
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Post by The Perilous Dreamer on Feb 24, 2021 22:18:08 GMT -5
I remember reading a science fiction story wherein teaching was done by androids, which were designed to look and sound like children just a little bit older than their students. The theory was that children naturally give the most attention to those they perceive as knowledgeable peers. The story acknowledged that this really only worked with younger children, IIRC no older than about ten. Still, I think it's an interesting possibility. My dad when to a one room school in central WV through the 8th grade, which is as far as he went. With one teacher, 8 grades and about 20 kids, the older kids taught the younger kids all the time. In fact one of the ways you proved that you understood things was by teaching someone younger. So kids as they went through school naturally sorted themselves into those who really understood things and those who understood enough to get by. On the other hand almost everyone was good at something.
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Post by mao on Mar 16, 2021 5:37:14 GMT -5
Yeah, raikenclw and The Perilous Dreamer , tempted to delete a couple of posts, but now lets just say that politics domestic or foreign is off the table for discussion. Now if you want to go down to the Post-Apocalyic area and write a Gamma World style scenario that starts with a bug and work something up, that is open. this
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Post by mao on Mar 16, 2021 6:38:34 GMT -5
Ryan got me up at 1 am yesterday and 3 am today, got a ton of stuff started on Armour World
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Post by hengest on Mar 16, 2021 12:51:33 GMT -5
Ryan got me up at 1 am yesterday and 3 am today, got a ton of stuff started on Armour World Awesome (about AW). I started Evening Bell and had my most productive period while I had a concussion. Sometimes difficulty opens up creativity, I guess. "Art through adversity."
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Post by simrion on Mar 17, 2021 7:32:41 GMT -5
Ryan got me up at 1 am yesterday and 3 am today, got a ton of stuff started on Armour World Awesome (about AW). I started Evening Bell and had my most productive period while I had a concussion. Sometimes difficulty opens up creativity, I guess. "Art through adversity." Coping through creativity makes sense to me 🙂
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Post by The Perilous Dreamer on Mar 17, 2021 15:14:33 GMT -5
mormonyoyoman shares the following: His neurological problems make looking at any type of phone or computer screen painful along with his eye sight being messed up and everything looked blurred but not correctable glasses because it is not physical with his eyes, but neurological. Please pray for Chet.
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Post by Admin Pete on Mar 17, 2021 15:54:09 GMT -5
mormonyoyoman shares the following: His neurological problems make looking at any type of phone or computer screen painful along with his eye sight being messed up and everything looked blurred but not correctable glasses because it is not physical with his eyes, but neurological. Please pray for Chet. And all of us for each other.
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Post by mao on Mar 18, 2021 5:25:13 GMT -5
Awesome (about AW). I started Evening Bell and had my most productive period while I had a concussion. Sometimes difficulty opens up creativity, I guess. "Art through adversity." Coping through creativity makes sense to me 🙂 God is touching me, I have adapted to Ryan waking me up between 1 and 330 am, that where all my time is spent here, really helping me cope. I never knew how much I needed this place. Special thanx to Irish Warrior for recruiting me for here. I jumped right in and never looked back.
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Post by simrion on Mar 18, 2021 15:22:48 GMT -5
mormonyoyoman shares the following: His neurological problems make looking at any type of phone or computer screen painful along with his eye sight being messed up and everything looked blurred but not correctable glasses because it is not physical with his eyes, but neurological. Please pray for Chet. Prayers definitely Chet's way. Let him know he is truly missed. Wonder if he might qualify to take advantage of technology for visually impaired such as dictation AI and computer readers. Something allowing him to engage virtually without the pain caused by viewing.
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Post by The Perilous Dreamer on Mar 18, 2021 16:59:29 GMT -5
mormonyoyoman shares the following: His neurological problems make looking at any type of phone or computer screen painful along with his eye sight being messed up and everything looked blurred but not correctable glasses because it is not physical with his eyes, but neurological. Please pray for Chet. Prayers definitely Chet's way. Let him know he is truly missed. Wonder if he might qualify to take advantage of technology for visually impaired such as dictation AI and computer readers. Something allowing him to engage virtually without the pain caused by viewing. I do not know all of his health issues, but I know that he told me on FB that he cannot talk on the phone anymore at all, so it is more than just site and balance, has lot of other issues. His work with explosives earlier in life exposed him to an unknown but high number of concussions and he is paying the price for that now. he is one of those veterans who has lingering serious issues from their service.
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Post by raikenclw on Mar 20, 2021 23:19:19 GMT -5
Prayers for Chet (mormonyoyoman) and the rest of y'all!
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